It's been quite some time since our last update, over a year in fact! Maddie has made incredible strides in many different areas and we're thrilled to share all the news. Medical Stability: An Upward Trend Medically, Maddie has been improving or at least maintaining stability over the past year. She even managed to take …
This year has just flown by and we wanted to give everyone to do the highlights so far. Maddie just turned six in August and looking back at the past 5 years she made so many improvements. We're very grateful for all of the doctors and therapists and caregivers and family who have helped us …
Hi Everyone! The last few months flew by and we have a lot of updates! With Maddie's seizures still under control, she has made a lot of progress with her therapies. Virtual school has still been a challenge without all the physical interaction, but she's still enjoying the classes and 1:1 time with her teacher. …
It has been a crazy 10 months since our last update and we have lots to share! The pandemic "stay at home" orders in VA started right after our last neuro appointment for Maddie in March and we are so grateful the tests came back clear. Since early March, our household have been under very …
Hi Everyone, The below blog was written a few weeks ago (when things were starting to get crazy with COVID-19) and given how much has changed in the past few weeks, we'll soon follow with another. Just wanted to post as this is already delayed 🙂 Maddie spent the entire month of Feb on her …
Hi everyone, It's been a while since we've written a blog and a lot has happened in the meantime. Thanksgiving, Christmas, New Year's and Chinese New Year have all passed now and we have lots of updates! Maddie's Physical Improvements Maddie has improved in many ways these few months. She's able to sit up much …
Hi Everyone, Summer has started and Maddie's out of school! Her last week of school was the first week of June. All her teachers and specialists have been amazed with the progress she has made since the fall. The steroids have been a miracle in terms of resetting her seizure activity. We're so thankful for …
Hi Everyone, Maddie turned two in August and that means she’s been home from rehab for a year now! Although it’s hard to compare her condition to her baseline prior to brain surgery, we are extremely thankful for all the progress she’s made since leaving rehab last summer. We will take it a day at …
As mentioned in last month’s post, the indoor base for adaptive seat arrived, so she’s been spending more time in it and is adjusting quite well as you can see below (probably because she now associates it with eating instead of just being strapped in for a walk previously). Maddie’s sitting has been improving these …
Maddie’s vision has progressed nicely these past few weeks! Previously, she was using her vision maybe a few times a week, but she’s now seeing things at least once a day. She’s still more inclined to see familiar items that are the shiny, mylar material. However, even with new things of that material, she’s able …
Bill + Jennifer 