Hi everyone, The last few months have been a whirlwind of activity and we've got a lot of updates for everyone. Maddie's physical as well as neurological development have progressed very well and she's added a couple pounds to boot! On the job front, after three years of taking care of Maddie full time, Jen …
Hi Everyone, It’s been a while since our last post (so get ready for a lot of pictures!), but Maddie's had a fun-filled summer! She went on her first vacation to the beach, we went to the orchard to pick fruit, and we celebrated Father’s Day, July 4th and BOTH Abby and Maddie’s birthday! Can’t believe …
Hi Everyone, Happy Spring! Seems like the warm weather has finally made its way here! Maddie’s going out on walks more often and especially loves the sounds of birds chirping. She’s also able to eat some meals in our backyard patio and also loves the sound of our neighbor’s wind chimes. We’ll start off with …
Hi Everyone, It’s been a little crazy with the holidays and everything else since the last blog post, but the amazing news is that Maddie’s convulsing seizures have continued to stay away so we are currently free of those types of seizures! In the past few weeks, we’re starting to see some eye fluttering and …
Hi Everyone, Maddie’s seizures have been a major focus recently so we’ll start on that topic. So much has happened and changed since our last blog post and even now, Maddie’s still going through quite a bit of change as we’re trying new ways to control her seizures. In the couple of weeks following our …
Hi Everyone, We’ve had an eventful past couple of weeks with summer ending and fall beginning, so get ready for a long post! I’ve divided the post into general sections so it’s a little easier to follow: Seizures Birthday Therapies Preschool Little tidbits: Pooltime, Music SEIZURES Unfortunately, since last month’s post, Maddie’s seizures have continued …
Hi Everyone, Maddie's seizures have continued and not seen much improvement since our last post. We've been testing new medications at different dosages for many weeks with no success. Maddie still has multiple seizures a day and has various types now instead of just the original twitching (pre-March). Without using obscure medical terms, I would …
Hi Everyone, It’s been quite a while since our last post. Maddie had an electroencephalogram test (EEG) and this time, her twitches have been formally diagnosed as seizures. Although they weren't called seizures previously, we treated them as such and the neurologist had explained that her previous EEG might not have picked them up as …
Hi Everyone, Hope everyone has been enjoying/adjusting to the roller coaster of weather we’ve been going through! It’s been a while since our last post so there’s a lot to update, so we've added a little list to make it easier... Maddie's cold/congestion has caused her to have more severe seizures Too many variables to …
Happy New Year Everyone! We'll start off with some holiday pictures 🙂 With Maddie's hi-low base, we were able to lower her seat to the ground so she could enjoy some present-opening Christmas morning! We were so excited she tore the wrapping paper until she started to eat it... Some self-portraits... and some sister shots …
Bill + Jennifer 