It's been quite some time since our last update, over a year in fact! Maddie has made incredible strides in many different areas and we're thrilled to share all the news. Medical Stability: An Upward Trend Medically, Maddie has been improving or at least maintaining stability over the past year. She even managed to take …
This year has just flown by and we wanted to give everyone to do the highlights so far. Maddie just turned six in August and looking back at the past 5 years she made so many improvements. We're very grateful for all of the doctors and therapists and caregivers and family who have helped us …
It has been a crazy 10 months since our last update and we have lots to share! The pandemic "stay at home" orders in VA started right after our last neuro appointment for Maddie in March and we are so grateful the tests came back clear. Since early March, our household have been under very …
Hi Everyone, The below blog was written a few weeks ago (when things were starting to get crazy with COVID-19) and given how much has changed in the past few weeks, we'll soon follow with another. Just wanted to post as this is already delayed 🙂 Maddie spent the entire month of Feb on her …
Hi everyone, It's been a while since we've written a blog and a lot has happened in the meantime. Thanksgiving, Christmas, New Year's and Chinese New Year have all passed now and we have lots of updates! Maddie's Physical Improvements Maddie has improved in many ways these few months. She's able to sit up much …
Hi everyone, The last few months have been a whirlwind of activity and we've got a lot of updates for everyone. Maddie's physical as well as neurological development have progressed very well and she's added a couple pounds to boot! On the job front, after three years of taking care of Maddie full time, Jen …
Hi Everyone, Summer has started and Maddie's out of school! Her last week of school was the first week of June. All her teachers and specialists have been amazed with the progress she has made since the fall. The steroids have been a miracle in terms of resetting her seizure activity. We're so thankful for …
Hi Everyone, Maddie's seizures have continued and not seen much improvement since our last post. We've been testing new medications at different dosages for many weeks with no success. Maddie still has multiple seizures a day and has various types now instead of just the original twitching (pre-March). Without using obscure medical terms, I would …
Hi Everyone, Hope everyone has been enjoying/adjusting to the roller coaster of weather we’ve been going through! It’s been a while since our last post so there’s a lot to update, so we've added a little list to make it easier... Maddie's cold/congestion has caused her to have more severe seizures Too many variables to …
Happy New Year Everyone! We'll start off with some holiday pictures 🙂 With Maddie's hi-low base, we were able to lower her seat to the ground so she could enjoy some present-opening Christmas morning! We were so excited she tore the wrapping paper until she started to eat it... Some self-portraits... and some sister shots …
Bill + Jennifer 