Hi Everyone, Hope you all had a great Thanksgiving with loved ones, delicious food and maybe some shopping too! Here's Maddie with her turkey shirt 🙂 Since our last post, we’ve had some gains in Maddie’s vision, although not consistent every day. She’s getting better at using her vision in positions other than flat on …
It’s been a busy couple of weeks since the last post… Maddie’s received some long awaited therapy equipment, had a few doctor appointments, was a flower girl and dressed up for Halloween! Maddie’s growing so fast we had to order new orthotics (specifically, AFOs or ankle-foot orthosis foot braces) for her because her old ones …
Hi Everyone, Maddie turned two in August and that means she’s been home from rehab for a year now! Although it’s hard to compare her condition to her baseline prior to brain surgery, we are extremely thankful for all the progress she’s made since leaving rehab last summer. We will take it a day at …
As mentioned in last month’s post, the indoor base for adaptive seat arrived, so she’s been spending more time in it and is adjusting quite well as you can see below (probably because she now associates it with eating instead of just being strapped in for a walk previously). Maddie’s sitting has been improving these …
Maddie’s vision has progressed nicely these past few weeks! Previously, she was using her vision maybe a few times a week, but she’s now seeing things at least once a day. She’s still more inclined to see familiar items that are the shiny, mylar material. However, even with new things of that material, she’s able …
It’s been awhile since the last post, mostly because Maddie caught a cold, so things kind of stayed at a plateau for a while. Although she showed symptoms (congestion, runny nose) for only a few days, she was kind of out of it for 2 weeks or so. During that time, we didn’t push too …
Hi Everyone, We have some vision updates!! As a quick recap, back in January, Maddie had her visit from the VA state department for the visually impaired and Maddie’s condition/diagnosis was described as cortical visual impairment (CVI). CVI is visual impairment due to a problem with the brain and not the eyes. Nothing is structurally …
Hi Everyone, These past few weeks have been busy with the holiday season coming and going. Maddie was even able to partake in opening one of her presents Christmas morning! Over the past few weeks, Maddie‘s head/neck control and core strength have noticeably improved so now a lot of her therapy sessions are focused on …
Hi Everyone, Maddie has continued to improve her fine motor skills and overall awareness these past few weeks. Her hands are starting to (although not 100% of the time) play with each other and to occasionally grab toys from one hand to the other! Her overall head control has also been improving and is more …
Hi Everyone, Maddie has continued to get stronger and stronger these past few weeks. See below for some therapy session pictures. As mentioned in last time’s post, the most exciting development has been the emergence of some fine motor skills with her left hand. In these recent weeks, the right hand is also showing signs …
Bill + Jennifer 