Hi Everyone, It’s been a little crazy with the holidays and everything else since the last blog post, but the amazing news is that Maddie’s convulsing seizures have continued to stay away so we are currently free of those types of seizures! In the past few weeks, we’re starting to see some eye fluttering and …
Maddie update – Dec 19, 2018
Hi Everyone, Maddie’s seizures have been a major focus recently so we’ll start on that topic. So much has happened and changed since our last blog post and even now, Maddie’s still going through quite a bit of change as we’re trying new ways to control her seizures. In the couple of weeks following our …
Maddie update – Oct 1, 2018
Hi Everyone, We’ve had an eventful past couple of weeks with summer ending and fall beginning, so get ready for a long post! I’ve divided the post into general sections so it’s a little easier to follow: Seizures Birthday Therapies Preschool Little tidbits: Pooltime, Music SEIZURES Unfortunately, since last month’s post, Maddie’s seizures have continued …
Maddie update – Aug 5, 2018
Hi Everyone, Maddie's seizures have continued and not seen much improvement since our last post. We've been testing new medications at different dosages for many weeks with no success. Maddie still has multiple seizures a day and has various types now instead of just the original twitching (pre-March). Without using obscure medical terms, I would …
Maddie update – May 20, 2018
Hi Everyone, It’s been quite a while since our last post. Maddie had an electroencephalogram test (EEG) and this time, her twitches have been formally diagnosed as seizures. Although they weren't called seizures previously, we treated them as such and the neurologist had explained that her previous EEG might not have picked them up as …
Maddie update – Mar 12, 2018
Hi Everyone, Hope everyone has been enjoying/adjusting to the roller coaster of weather we’ve been going through! It’s been a while since our last post so there’s a lot to update, so we've added a little list to make it easier... Maddie's cold/congestion has caused her to have more severe seizures Too many variables to …
Maddie update – Jan 7, 2018
Happy New Year Everyone! We'll start off with some holiday pictures 🙂 With Maddie's hi-low base, we were able to lower her seat to the ground so she could enjoy some present-opening Christmas morning! We were so excited she tore the wrapping paper until she started to eat it... Some self-portraits... and some sister shots …
Maddie update – Dec 7, 2017
Hi Everyone, Hope you all had a great Thanksgiving with loved ones, delicious food and maybe some shopping too! Here's Maddie with her turkey shirt 🙂 Since our last post, we’ve had some gains in Maddie’s vision, although not consistent every day. She’s getting better at using her vision in positions other than flat on …
Maddie update – Nov 3, 2017
It’s been a busy couple of weeks since the last post… Maddie’s received some long awaited therapy equipment, had a few doctor appointments, was a flower girl and dressed up for Halloween! Maddie’s growing so fast we had to order new orthotics (specifically, AFOs or ankle-foot orthosis foot braces) for her because her old ones …
Maddie update Sep 24, 2017
Hi Everyone, Maddie turned two in August and that means she’s been home from rehab for a year now! Although it’s hard to compare her condition to her baseline prior to brain surgery, we are extremely thankful for all the progress she’s made since leaving rehab last summer. We will take it a day at …
Bill + Jennifer 