As mentioned in last month’s post, the indoor base for adaptive seat arrived, so she’s been spending more time in it and is adjusting quite well as you can see below (probably because she now associates it with eating instead of just being strapped in for a walk previously). Maddie’s sitting has been improving these …
Maddie Update July 10, 2017
Maddie’s vision has progressed nicely these past few weeks! Previously, she was using her vision maybe a few times a week, but she’s now seeing things at least once a day. She’s still more inclined to see familiar items that are the shiny, mylar material. However, even with new things of that material, she’s able …
Maddie Update June 15, 2017
It’s been awhile since the last post, mostly because Maddie caught a cold, so things kind of stayed at a plateau for a while. Although she showed symptoms (congestion, runny nose) for only a few days, she was kind of out of it for 2 weeks or so. During that time, we didn’t push too …
Maddie Update – Apr 29, 2017
Hi Everyone, We have some vision updates!! As a quick recap, back in January, Maddie had her visit from the VA state department for the visually impaired and Maddie’s condition/diagnosis was described as cortical visual impairment (CVI). CVI is visual impairment due to a problem with the brain and not the eyes. Nothing is structurally …
Maddie Update Mar 30, 2017
Hi Everyone, It’s been a while since our last post, so get ready for lots of photos! Since our last post, Maddie has been to a couple of doctor’s appointments: pediatrician for her 18 month check-up cardiologist for a normal follow-up GI doctor for her g-tube removal (yes, you read that right, her g-tube is …
Maddie Neuro – Update to Feb 9, 2017 Post
Just a quick update, but we heard back late last week from the neurologist and he's okay for us to stay where we are! That means Maddie can continue at this lower dosage of anti-seizure medication and hold off on starting the second medication. We will continue to monitor her episodes for severity/frequency and contacting the …
Maddie Update – Feb 9, 2017
Hi Everyone, These past few weeks have been more routine and relaxed as compared to the busy festivities at the end of last year. Maddie continues to have three to four therapy sessions per week with doctor’s visits here and there. Maddie’s biggest accomplishment recently (that we’re so proud of!) is her ability to sip from …
Maddie Update Jan 12, 2017
Hi Everyone, These past few weeks have been busy with the holiday season coming and going. Maddie was even able to partake in opening one of her presents Christmas morning! Over the past few weeks, Maddie‘s head/neck control and core strength have noticeably improved so now a lot of her therapy sessions are focused on …
Maddie Update Dec 9th, 2016
Hi Everyone, Maddie has continued to improve her fine motor skills and overall awareness these past few weeks. Her hands are starting to (although not 100% of the time) play with each other and to occasionally grab toys from one hand to the other! Her overall head control has also been improving and is more …
Maddie Update – Nov 7, 2016
Hi Everyone, Maddie has continued to get stronger and stronger these past few weeks. See below for some therapy session pictures. As mentioned in last time’s post, the most exciting development has been the emergence of some fine motor skills with her left hand. In these recent weeks, the right hand is also showing signs …
Bill + Jennifer 