Hi everyone, On Friday Maddie was successfully extubated (breathing tube removed) and she was able to make a few feeble cries when she was fully awake. She was still on morphine and fell asleep for most of the rest of the day. Her kidneys, liver, and blood stats were all improving daily. I went home …
Maddie update 4/27 and 4/28
Dear friends, Apologies for not writing last night, we came home to spend time with Abby and today Jen and I went back to the hospital but I came back home in the afternoon to relieve my parents a bit. Jen's taking a shift at the hospital by herself. We are so thankful that the …
Maddie update 4/26
Hi praying friends, We were awoken this morning by alarm bells and about 5-6 nurses/doctors rushing into our room. Maddie's respiratory tubes were being suctioned for routine cleaning and her heart rate had inexplicably dropped precipitously but then self-corrected within 10-15 seconds. This was the 3rd episode since chest closure yesterday. They have her back …
Maddie update 4/25
Hi everyone, This morning we took Abby to see some friends who were visiting from the west coast and got to play and eat lunch with her. So we only got to the hospital around 4pm. Maddie's chest had been left open after coming off the bypass machine yesterday as a precaution but the surgeon …
Maddie update 4/24
Hi everyone, Praise the Lord! Maddie successfully came off the bypass machine this morning around 7:30AM. The surgeon and cardiac doctors were very impressed with how well her system is handling the transition and her heart is beating now without pacemaker support. They gave her a lot of anesthetic and muscle relaxers to prevent her …
Maddie update 4/23
Hello everyone. Thanks to everyone for your continued prayers and we will try to update whenever we know more information. Maddie's condition is getting better slowly. Overnight she woke up a little bit more from the anesthesia they had to give her during the cath procedure and when we arrived, she stirred. After we talked …
Maddie post surgery day 3 – Cardiac Arrest
Around 1:30pm on day 3 of her recovery from tetralogy of fallot repair surgery, Maddie's breathing and oxygen levels dropped to the point that the doctors had to intubate her again. They had removed the breathing tube the day before and she was on just O2 via cannulas pumping into her nostrils. During the intubation …
Maddie post surgery day 1 and 2
Maddie's surgery went very well and everything was as expected. The surgery team put her down and immediately went to work hooking up the bypass machine, repairing the hole with a plug of cow heart tissue, and stitching her back up. The entire surgery went about 2 hours and we spent the time with Val, …
Maddie’s surgery day 4/18
We've known for a long time that Maddie will need surgery to repair a heart defect the cardiologists found when Jen was still pregnant with her. She has a rare condition called tetralogy of fallot where the wall separating the two chambers of her heart has a hole in it. This causes oxygenated blood coming …
Bill + Jennifer 