With mommy and Maddie suddenly back at the hospital (and most recently transferred to Kennedy Krieger Institute in Baltimore), making sure that Abby has a relatively routine summer has been a bit of a challenge. But with the help of grandparents, auntie Kelly, uncle Mario, and all her friends, we've been able to keep her …
Hi praying friends, It's been a hectic week for Maddie. In order to ensure proper feeds, the doctors performed a small operation to install a gastrostomy tube directly into Maddie's abdomen. The operation went smoothly and they started feeding from it last Sunday morning and she is now taking up to 7 ounces of formula …
Hi Everyone, Thank you again for your continued prayers. Maddie has continued to be medically and neurologically stable. Medically, she has had noisy and rapid breathing for the past few days (not due to her lungs, but to due her upper airway collapsing as she breathes). It's not dangerous as long as her oxygen levels …
Dear friends and family, Thank you all for your continued prayers and support. Praise the lord Maddie has continued to be seizure free since last Friday even as we took away the stronger two anti-seizure medications (last dose was last Sunday). She is just on one anti-seizure medication now (which is one they said we'd …
Dear friends and family, Thank you all for your continued prayers and support. Maddie is going through what the neurologist says is the recovery process from major brain surgery. Due to the immense pressure exerted on her brain from the hematoma, there will be swelling as the brain recovers in size. The swelling could also …
Hi everyone, Monday afternoon Maddie suffered a subdural haematoma (bleeding inside the skull but outside the brain) on her right hemisphere and was airlifted from Reston ER to Fairfax Inova PICU. Yesterday (Tues) afternoon the pediatric neurosurgeon performed a craniotomy (cut a hole into skull) and removed over 70 CCs of old and new blood. …
This year was Bill's first Father's day with two daughters! It was an amazing day with giggly children, smiling parents, and even Jen's dad was able to come visit us from California. Here's a picture of Bill with the girls. Maddie is still recovering from her hospital stay, but it's been about 3 weeks since …
Hi all, It's been about two weeks since Maddie came home from the hospital. She's doing very well and her follow up appointments have all been uneventful. She is able to sit for an extended amount of time with minimal support and is starting to stand while leaning on something for a short while. Abby …
Hey all, We took the girls to PetCo and took some pictures. Abby pushed Maddie all over the store and Maddie was enthralled with her older sister. Maddie always felt more secure by holding onto the sides of the carseat.
Hi all, Maddie was discharged from the hospital Thurs evening and she's had a great first day home! Abby has been busy making her giggle like a squeaky toy. She is going to be on a special formula to help her lymphatic system recover and we're still adjusting to the new handling instructions from the …
Bill + Jennifer 