Hi Everyone, Thank you again for your continued prayers. Maddie has continued to be medically and neurologically stable. Medically, she has had noisy and rapid breathing for the past few days (not due to her lungs, but to due her upper airway collapsing as she breathes). It's not dangerous as long as her oxygen levels …
Category: Maddie
Maddie Update July 2nd
Dear friends and family, Thank you all for your continued prayers and support. Praise the lord Maddie has continued to be seizure free since last Friday even as we took away the stronger two anti-seizure medications (last dose was last Sunday). She is just on one anti-seizure medication now (which is one they said we'd …
Maddie Update June 26th
Dear friends and family, Thank you all for your continued prayers and support. Maddie is going through what the neurologist says is the recovery process from major brain surgery. Due to the immense pressure exerted on her brain from the hematoma, there will be swelling as the brain recovers in size. The swelling could also …
Maddie Update 6/22 – Urgent
Hi everyone, Monday afternoon Maddie suffered a subdural haematoma (bleeding inside the skull but outside the brain) on her right hemisphere and was airlifted from Reston ER to Fairfax Inova PICU. Yesterday (Tues) afternoon the pediatric neurosurgeon performed a craniotomy (cut a hole into skull) and removed over 70 CCs of old and new blood. …
Father’s Day 2016
This year was Bill's first Father's day with two daughters! It was an amazing day with giggly children, smiling parents, and even Jen's dad was able to come visit us from California. Here's a picture of Bill with the girls. Maddie is still recovering from her hospital stay, but it's been about 3 weeks since …
Maddie Update 6/9
Hi all, It's been about two weeks since Maddie came home from the hospital. She's doing very well and her follow up appointments have all been uneventful. She is able to sit for an extended amount of time with minimal support and is starting to stand while leaning on something for a short while. Abby …
PetCo Visit
Hey all, We took the girls to PetCo and took some pictures. Abby pushed Maddie all over the store and Maddie was enthralled with her older sister. Maddie always felt more secure by holding onto the sides of the carseat.
Maddie’s Home!
Hi all, Maddie was discharged from the hospital Thurs evening and she's had a great first day home! Abby has been busy making her giggle like a squeaky toy. She is going to be on a special formula to help her lymphatic system recover and we're still adjusting to the new handling instructions from the …
Maddie Update 5/20 – 5/22 Abby Visit
Hi everyone! Praise God for all Maddie has been able to accomplish these past few days. Although she did not like the lowfat formula the first time, she quickly picked up and was eating more than the doctors expected by the next day and her intake has been increasing everyday. Boy does food make a …
Maddie update 5/19
Hi everyone! We got approval to transfer this morning and the transport team from Inova, who originally transported us to Children's, came around noon and whisked Maddie back to Fairfax. We drove separately after packing up our stuff. Before leaving we took Maddie back to the the CICU and said bye to all the nurses …
Bill + Jennifer 